ABOUT US

2013

In Jul 2013 Cope with Cancer website was initiated and later in August Cope with Cancer website soft launched with about 20+ pages. In the course of the year Cope with Cancer updated to 120+ pages. More information on resources & related topics for cancer patients and caregivers added. We changed the website from static to dynamic. In September 2013 itself we had 150000 hits on the website – 7000 hits per month

In September we tied up with Helpline: iCALL for tele counseling and later with Helpline: Aasra. 

Nov 2013 we tied up with Midtown Parel for concessional radiology investigations for TMH patients

2014

At the rate of 9000 hits per month we had over 100,000 visitors assisted through cope with cancer website and by December 350,000 patients and caregivers were assisted through the website

2014 saw us run a number of awareness drives. Hair donation awareness program was launched,  we participated in Lavasa Car Rally. We associated with Red FM Cochin for hair donation drive in Kerala and subsequently a Hair donation awareness program along with the Tuning Folks. We tied up with R K wigs Pankaj Bhupatkar for wigs.

We initiated discounted mammography with Suburban Diagnostics, Jankharia Imaging, Dr Aman Daftary’s Clinic, Dr Ambrish Dalal’s clinic & Dr Gala’s clinic. Discounted prosthesis and services offered on CopewithCancer website

Counselors Training program was launched in September 2014, where Dr. Nagesh Simha, a specialist in palliative care gave a lecture on “Psychosocial and spiritual issues in palliative care” at TISS to the students of psychiatry.

In September, we started disbursing funds for investigations and treatment for patients at Tata Hospital Mumbai through MSW department.

2015

In January we started disbursing free wigs to women patients in Tata Hospital parel.  In March we had a wig donation program in TMH & felicitation of Madat Trust for activities done at TMH. Again we partnered with Red FM Cochin hair donation drive in Kerala

In June cope with cancer partnered with Association of Medical Consultants for spreading awareness about cancer. Superb performance by Sivamani and Runa Sivamani to celebrate Doctors Day at In Orbit mall Malad. 

In July educational & financial aid given to cancer victors’ (computer and funds)

In July as a part of Doctors Day program, we presented the activities the association with AMC for the year 2015 – 16.

In September Helpdesk was started in TMH Golden Jubilee Building with volunteers to assist patients

By December 700,000 cancer patients and caregivers were benefited  through our online and telephonic counseling service and our website

2016

In January we started Helpdesk, wig donation, financial assistance and post op counseling in ACTREC Tata, Kharghar. We also attended counseling workshop organized at Actrec

Awareness program for cope with cancer with the Tuning Folks was organised

In March we started post operation counseling sessions with breast OPD

In March we also participated in Hair donation drive and awareness program at Jaslok hospital on the occasion of Women’s Day

In April we started Pediatric ward counseling sessions and student volunteers spent time with patients in pediatric ward during their annual vacation. The volunteers started manning the genera Helpline & Helpdesk at Tata Hospital Parel

Come August  the information on the cope with cancer website was re-organised and updated. The site has been spruced up with a with a new look and made mobile friendly.

2017

Patient Assistance in TMH

• April 2017, weekly Pediatric ward counseling sessions for pediatric ward patients and caregivers in TMH continues with a very positive feedback from the patients, caregivers and organizers.
• Volunteers continue to hold counseling & physiotherapy sessions for post-operative patients at breast OPD in Tata Memorial Hospital and Actrec
• Volunteers continue to accompany and explain the patients with language barrier to understand the doctor in the OPD
• Madat contributes at the main Helpline at Tata Memorial compound. Since April 2016 the volunteers started manning the general Helpline
  • The volunteers guide, navigate and assist the patients, caregivers and other organizations
  • Help in serving food at lunch time
  • Guide the donors & Distribute donations
• April 2017, volunteers attended CME workshop organized at Sir H N Reliance Foundation Hospital to raise awareness about physical as well as psychological rehabilitation of the patients who are on cancer therapy was discussed. One of the most significant part of cancer therapy is Rehabilitation of the patient back to his / her physical and mental status as it was pre therapy.

2017 cont’d.

Financial Assistance to patients

• Financial assistance continues at TMH and Actrec. Average proportion spent is chemotherapy 70%, radiotherapy 14%, surgery 4%, & ICU support 12%
• Financial assistance given to patients for discounted radiotherapy to be done at Hiranandani Hospital.

Discounted Investigations

• Discounted radiology investigations & nuclear scans being provided to patients through CWC website. Adding more service providers for better rates and convenience.
• Negotiated terms with various institutions to provide discounted Radiotherapy and with onco-surgeons for economically challenged patients outside Tata Hospital

Hair & wig Donation

• Donate about 50 wigs per month at TMH and online requests

Patient comfort through Ola Cabs

• Ola Cabs continue to provide 20% discount to Tata Hospital patients to travel in comfortable & hygienic environment since April 2017. More than 600 patients and caregivers per month avail of this facility

2018

Patient Assistance in TMH

• April 2017, weekly Pediatric ward counseling sessions for pediatric ward patients and caregivers in TMH continues with a very positive feedback from the patients, caregivers and organizers.
• Volunteers continue to hold counseling & physiotherapy sessions for post-operative patients at breast OPD in Tata Memorial Hospital and Actrec
• Volunteers continue to accompany and explain the patients with language barrier to understand the doctor in the OPD
• Madat contributes at the main Helpline at Tata Memorial compound. Since April 2016 the volunteers started manning the general Helpline
  • The volunteers guide, navigate and assist the patients, caregivers and other organizations
  • Help in serving food at lunch time
  • Guide the donors & Distribute donations
  • April 2017, volunteers attended CME workshop organized at Sir H N Reliance Foundation Hospital to raise awareness about physical as well as psychological rehabilitation of the patients who are on cancer therapy was discussed. While most doctors are focusing on treatment of cancer and improving survival for patients, there are a few other factors which are important for patients, which do not seem to get focused on often. One of the most significant part of cancer therapy is Rehabilitation of the patient back to his / her physical and mental status as it was pre therapy

Website www.copewithcancer.org – Nationwide information about the resources needed by cancer patients & information about the disease and its effects

• August 2016 CWC website updated with more information and a new look
• Blogs, articles and information added on the website.

Financial Assistance to patients

• Financial assistance continues at TMH and Actrec. Average proportion spent is chemotherapy 70%, radiotherapy 14%, surgery 4%, & ICU support 12%
• Financial assistance given to patients for discounted radiotherapy to be done at Hiranandani Hospital.

Discounted Investigations

• Discounted radiology investigations & nuclear scans being provided to patients through CWC website. Adding more service providers for better rates and convenience.
• Negotiating terms with various institutions to provide discounted Radiotherapy for patients outside Tata Hospital
• Negotiating terms with various onco-surgeons to provide discounted surgeries for economically challenged patients.

Hair & wig Donation

• Tied up with another wigmaker as the demand for wigs is constantly increasing.
• Donate about 50 wigs per month at TMH and online requests

Awareness Programs

• April 2017, The Tuning Folks once again dedicated a musical evening to Madat trust for raising awareness about cancer care.
• September 2017 Project 6Kx6K launched to make more people aware and involved in cancer care.
• October 2017 Aapollo Multimedia supported Madat Trust activities to bring about an awareness through a musical program.
• November 2017, Sargam, The Musical Medicos, supported Madat Trust activities to bring about an awareness through a musical program.
• December 2017, photo booth organized at Christmas Party for children at TMH. Small attempt to make sure that they took with them some pleasant memories of Tata as well. More than 200 children with their caregivers were given a photograph clicked with props.
• February 2018 Aapollo Multimedia supported Madat Trust activities to bring about an awareness through a musical program. A brief AV of Madat was shown to the audience.

Patient comfort through Ola Cabs

Ola Cabs continue to provide 20% discount to Tata Hospital patients to travel in comfortable & hygienic environment since April 2017. More than 600 patients and caregivers per month avail of this facility.

Counseling – Online & Telephonic Counseling To Patients & Caregivers

• Cancer patients and caregivers continue to access the counseling helplines iCALL & Aasra for psycho social solutions to their problems.

Dietary Suggestions & Recipes By Cookery Experts

• ongoing updates

2019

Patient Assistance in TMH

• Weekly post-operative counseling & physiotherapy sessions for breast OPD patients in TMH continue with very positive feedback from the patients & caregivers in Tata Memorial Hospital Parel and Actrec
• Volunteers continue to hold counseling sessions for pediatric, gynec & thoracic ward patients
• Volunteers continue to accompany and explain the patients with language barrier to understand the doctor in the OPD
• Madat contributes at the main Helpline at Tata Memorial compound. Since April 2016 the volunteers started manning the general Helpline
  • The volunteers guide, navigate and assist the patients, caregivers and other organizations
  • Help in serving food at lunch time
  • Guide the donors & Distribute donations

Website www.copewithcancer.org – Nationwide information about the resources needed by cancer patients & information about the disease and its effects

• CWC website updated with more information and a new look
• Blogs, articles and information added periodically on the website

Financial Assistance to patients

• Financial assistance continues at TMH and Actrec. Average proportion spent is chemotherapy 30%, radiotherapy 30%, surgery 22%, Investigations 8%  & supportive care 10%
• Financial assistance continues for patients at Homi Bhabha Cancer Hospital Varanasi
• Financial assistance given to the economically challenged patients for discounted chemotherapy, radiotherapy & surgery to be done at Dr L H Hiranandani Hospital, H N Reliance Hospital, MPCT Hospital, Asian cancer Institute, Masina Hospital, DNB Onco care, Holy spirit Hospital etc
• Tied up with a group of onco-surgeons called Mumbai Cancer Care – MCC who provide low cost packages for surgery. Madat Trust partially funds the needy patients.
• Negotiating terms with various Onco-Surgeons to provide discounted surgeries for economically challenged patients.
• Financial assistance with subsidy offered to TMH patients for diagnostic tests, the patients paying only what they would have paid at TMH

Discounted Investigations / treatment

• Discounted radiology investigations & nuclear scans being provided to patients through CWC website. Adding more service providers for better rates and convenience.
• Negotiating terms with various institutions to provide discounted Radiation therapy for patients outside Tata Hospital

Hair & wig Donation

• Donate appx 50 wigs per month to patients undergoing chemotherapy at Tata Hospital Mumbai, CMC Vellore, CIHSR Hospital at Dimapur Nagaland, Padhar Hospital Betul MP and to online requests from all over India.
• Hair donations received from individual donors, institutions & parlours from all over the country & abroad. More than 10000 men, women & children have donated as yet.
• February 2020, participated in Hairey’s Angel, the hair donation drive organised by Jaslok Hospital at kala Ghoda festival

Awareness Programs

• Promotion of Project 6Kx6K continues through various social media like Facebook, Twitter, Instagram etc to make more people aware and involved in cancer care.
• April 2019 Dr Anand Parihar participated in a panel discussion organised by Sanjeevani Trust for psycho-social support in cancer care which was attended by 700+ cancer patients, caregivers & guests.
• May, August, November 2019 Aadvita Multimedia supported Madat Trust activities to bring about awareness through a musical program.
• August 2019, The Tuning Folks once again dedicated a musical evening to Madat trust for raising awareness about cancer care.
• In September, volunteers attended the first of the three module organizational development program “Saksham” organised by S P Jain Institute of Management & Research through their Centre for Education in the Social Sector (CEdSS). This unique program was for patient support groups & patient advocates to bring sustainable impact towards patient centric care & to understand the increasing need of professionalism and sound process orientation required to manage and lead organizations.
• October 2019, formed a patient representative committee at Actrec with the directors & NGOs for patient benefit
• December 2019 participated in NGO workshop and the panel discussion at Lung Conference
• December 2019 attended the launch program of the Three Months Certification Course in Palliative Care at Mumbai. Course director Dr Naveen Salins (Professor and Head of the Department, Palliative Medicine and Supportive Care, Kasturba Hospital).
• December 2019, tied up with Happydemics, the company founded by the singer Shaan to promote upcoming talent. Every month one singer would perform at Actrec for patients, caregivers & doctors

• January 2020, attended first Testicular Cancer Survivors meet at Tata Memorial Hospital in association with Gunvati Jagan Nath Kapoor Foundation for understanding testicular patients’ counseling
• Feb 2020 Aadvita Multimedia once again supported Madat Trust activities to bring about awareness through a musical program.
• In March 2020, begun a campaign “ShootIt” demonstrating the method of breast self examination on social media sites. We requested the relevant doctors to make a one minute clip informing the viewers about the importance of BSE.

Counseling – Online & Telephonic Counseling To Patients & Caregivers

• Cancer patients and caregivers call our counsellors for psycho social solutions to their problems

Dietary Suggestions & Recipes By Cookery Experts

• Ongoing updates